Rare & Radiant Social Media Takeover

June 1 - 30

*

June 1 - 30 *

Join us for the annual #RareRadiantSelfie challenge, a powerful, visible way to raise awareness for rare disease during Pride Month by proudly wearing zebra stripes and sharing your connection to the rare community. Whether you’re a patient, caregiver, sibling, healthcare provider, researcher, friend, or ally, this campaign is open to everyone. While we’ll spotlight LGBTQ+ rare warriors throughout the month, you do not need to identify as queer to participate. This is about solidarity, celebration, and community.

Every June! Happy Pride!

Take the Challenge!

Here’s How:

  1. Dress in zebra stripes! Get creative with clothes, accessories, makeup, or face paint.

  2. Post a photo or video and share your rare disease connection in the caption: Are you living with a rare disease? Supporting someone? Driving innovation or change?

  3. Use the hashtag: #RareRadiantSelfie

  4. Tag 3 others to keep the awareness ripple going.

Throughout the campaign, our team will feature incredible 2SLGBTQIA+ rare warriors across platforms. Stay tuned on Instagram and LinkedIn to meet powerful voices moving advocacy forward.