Anna Grace
Patient
Hemophagocytic Lymphohistiocytosis (HLH)
Anna Grace came to be familiar with the challenges of illness through her own genetic disease, causing multiple rare complications, most notably of which are autoimmune autonomic ganglionopathy (AAG) resulting in intestinal failure and immune dysregulation resulting in mast cell dysfunction and hemophagocytic lymphohistiocytosis (HLH).
Now at age 23, she has dealt with the challenges of illness for 13 years. Although she has been significantly impacted by illness, it has also inspired her to help improve the way medical providers diagnose and treat illnesses, and she is passionate about supporting other people impacted by rare disease. Most recently, she has served as a patient ambassador to the Histiocytosis Association, representing those affected by HLH and other histiocytic diseases.
