Meet the Voices of Rare & Radiant.

The Rare & Radiant Pride Briefing brings together a powerful collective of speakers, advocates, caregivers, professionals, researchers, and community leaders committed to amplifying conversations at the intersection of rare disease and 2SLGBTQIA+ identity.

These voices represent lived experiences, professional expertise, and perspectives that are often excluded from healthcare, advocacy, and public dialogue. Through honest conversation, storytelling, education, and shared insight, our speakers help illuminate the realities, challenges, resilience, and joy within queer rare disease communities.

Together, they are helping create a future where every person feels seen, affirmed, and empowered to exist fully and authentically, in healthcare spaces and beyond.

Scroll below to meet the incredible individuals shaping this year’s Rare & Radiant Pride Briefing.