Social Media Challenge 2025
June 1-30
Launched as a call for visibility and joy, the Rare & Radiant Selfie Challenge invited rare disease warriors and allies to show up proudly and authentically, on their own terms and in their own colors. Each submission was a celebration of identity, community, and the power of being seen. While we didn’t reach as many people as we initially tried to plan for, we’re deeply proud of what we created, and even prouder of the fact that we saw it through, from beginning to end. Sometimes success isn’t measured in numbers, but in connection, and this challenge reminded us that if we can make even two people feel affirmed, valued, and seen, that’s meaningful. That’s movement. We’re especially grateful to the two incredible allies who participated: both extremely supportive nonprofit leaders and changemakers in the rare disease space who used their platforms to stand beside our vision and help bring it to life. Their solidarity was a reminder that allyship in action makes all the difference, and that building a more inclusive future requires both showing up and standing with.
